UOAA Support Groups & Stories 2025
Find Your Ostomy Community
You are not alone
What is UOAA?
The United Ostomy Associations of America (UOAA) is the leading nonprofit supporting ostomates since 1962. With over 300 local chapters, it offers:
- Free monthly support group meetings
- Certified ostomy nurses and peer visitors
- Online forums and youth programs
- Annual national conference
Find Local UOAA Support Groups
Use the UOAA Chapter Locator to find meetings near you. Most meet monthly in hospitals, libraries, or community centers.
What to Expect:
- 30–90 minute meetings
- Guest speakers (nurses, dietitians)
- Product demos (SIIL, Convatec)
- Confidential sharing circle
Online Ostomy Support Communities
- UOAA Discussion Board: ostomy.org/forum
- Facebook Groups: “Ostomy Support” (50k+ members)
- Inspire.com: Colostomy, Ileostomy, Urostomy forums
- Reddit: r/ostomy (moderated)
All are free, private, and moderated.
Real Ostomy Success Stories
“I thought my life was over at 28.”
— Sarah K., 31, New York
“After my ileostomy, I joined UOAA. My mentor showed me SIIL underwear. Now I run marathons and coach others.”
“My husband left. UOAA gave me family.”
— Mike R., 56, Texas
“The men’s group taught me to laugh again. I now lead meetings.”
“I met my fiancée at a UOAA dance.”
— Lisa M., 29, California
“We both have ostomies. We wear matching SIIL belts!”
Peer-to-Peer Ostomy Mentoring
UOAA’s Visitor Program connects you with a trained ostomate who’s been there. Request a visit here.
- Matched by age, ostomy type, gender
- In-person or virtual
- 100% confidential
Support for Family & Caregivers
Caregivers are welcome at all UOAA meetings. Special sessions cover:
- How to change a pouch
- Emotional support for partners
- Travel tips for families
UOAA Conferences & Events 2025
- National Conference: August 2025, Orlando
- Run for Resilience: Virtual 5K
- Youth Rally: For ages 8–17
Register at ostomy.org/events
Support Group FAQs
What is UOAA?
Largest ostomy support network in the US — 300+ chapters.
How to find local meetings?
Use UOAA chapter locator. Most meet monthly.
Are online groups safe?
Yes. All are moderated and private.
Can I talk to another ostomate?
Yes. Request a peer mentor via UOAA.
Are groups free?
100% free. No membership fees.
Can family come?
Yes. Caregivers are encouraged to attend.
Complete Your Ostomy Journey
Written by: John Rainier Yumang, Health Content Specialist
Medically Verified by: SIIL Ostomy Clinical Team
Last reviewed: November 14, 2025
